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007			cr |||||||||||
008			150615s2015 gw |||| o |||| 0|eng
010			_a 2019740764
020			_a9783319174167
024	7		_a10.1007/978-3-319-17416-7 _2doi
035			_a(DE-He213)978-3-319-17416-7
040			_aDLC _beng _epn _erda _cDLC
072		7	_aMJTF _2bicssc
072		7	_aMED058120 _2bisacsh
072		7	_aMKCM _2thema
072		7	_aMBNH _2thema
082	0	4	_a613 _223
100	1		_aMinor, Jessica. _eauthor.
245	1	0	_aInformed Consent in Predictive Genetic Testing : _bA Revised Model / _cby Jessica Minor.
250			_a1st ed. 2015.
264		1	_aCham : _bSpringer International Publishing : _bImprint: Springer, _c2015.
300			_a1 online resource (VII, 232 pages)
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_atext file _bPDF _2rda
505	0		_aIntroduction -- Predictive Genetic Testing -- The History and Components of Informed Consent -- Revised Model of Informed Consent -- Application of the Revised Model -- Conclusion.
520			_aThis important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Included in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
588			_aDescription based on publisher-supplied MARC data.
650		0	_aMaternal and child health services.
650		0	_aPsychotherapy.
650		0	_aCounseling.
650		0	_aHuman genetics.
650		0	_aHealth psychology.
650	1	4	_aMaternal and Child Health. _0https://scigraph.springernature.com/ontologies/product-market-codes/H27025
650	2	4	_aPsychotherapy and Counseling. _0https://scigraph.springernature.com/ontologies/product-market-codes/Y12010
650	2	4	_aHuman Genetics. _0https://scigraph.springernature.com/ontologies/product-market-codes/B12008
650	2	4	_aHealth Psychology. _0https://scigraph.springernature.com/ontologies/product-market-codes/Y12020
776	0	8	_iPrinted edition: _z9783319174174
776	0	8	_iPrinted edition: _z9783319174150
776	0	8	_iPrinted edition: _z9783319385587
906			_a0 _bibc _corigres _du _encip _f20 _gy-gencatlg
942			_2ddc _cBK _n0
999			_c8556 _d8556